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Sexuality Alliance

The Open University Sexuality Alliance

Developing sexuality guidance and standards for professionals who support people with life-limiting conditions

“It would be helpful to capture some sexual health things within standards learning like disability, including body image, connections and sexual beings within primary and secondary education.”
People with life-limiting conditions are living longer than ever before. The Open University Sexuality Alliance is working to ensure that people with life-limiting conditions are able to live fuller lives.

For the first time, Sexuality Guidance and Standards have been developed by The Open University’s Sexuality Alliance to assist staff who support people with life-limiting conditions. The Sexuality Alliance is a partnership including Together for Short Lives, the UK charity for children and young adults with life-limiting, life threatening conditions (LLTCs), other nationally renowned charities, service users, lawyers, academics and public sector organisations in the UK.

The Open University produced a video in early 2015 in collaboration with Together for Short Lives and Rainbows Children’s and Young People’s Hospice to explore why sexuality standards and guidance for staff, young adults with life-limiting and life-threatening conditions and their families are now required. The first phase of this work in 2015 was to produce the video below. 'Talking about Sex, Sexuality and Relationships: Guidance and Standards for those working with young people with life-limiting or life-threatening conditions' was first launched in London on December 1st 2015 in print and online. There is also a separate, two paged extract outlining the Principles, Guidance and Standards. Although no major changes have been made to the guidance, some additional legal references and information have been added to a second edition which is now available both on-line and in print. There is also a separate, two page extract outlining the Principles, Guidance and Standards.

To request a copy of either the guidance or extract, please email