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Dr Mary Larkin

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Profile summary

  • Central Academic Staff
  • Senior Lecturer
  • Faculty of Wellbeing, Education & Language Studies
  • School of Health, Wellbeing and Social Care
  • Health and Social Care
  • mary.larkin

Professional biography

I am a Senior Lecturer in Health and Social Care. My current teaching responsibilities include module Chair for both Ageing Societies and Global Health (K242) and Introduction to Health and Social care (K101) and authoring on Investigating health and social care (K323)  and  Leadership and management in health and social care (K313).

My interests are primarily: carers, adult social care, knowledge exchange, and the life course approach to health and well-being. I regularly lead on funded projects and undertake (national and international), consultancies, mentoring, Advisory posts, Research Fellowships and Commission Panel memberships around these areas; publish widely; am a member of. a number of national and international (professional, government and public) bodies; have extensive networks; carry out PhD supervision and examination; and am often invited to give presentations about my work. Over the past few years I has been committed to maximising the potential of the existing carer-related knowledge and evidence base to inform policy, services and interventions to support carers. To this end I set up an international carers research collaborative network; co-founded the International Journal of Care and Caring (IJCC) (for which I am also Reviews Editor); co-produced the Social Care Institute for Excellence (SCIE) ‘Carers’ hub’. ( https://www.scie.org.uk/carers/knowledge-review)and set up a Carer-related knowledge Exchange Network (CAREN) (www.open.ac.uk/caren)).

Within the OU, I have established and chair the Care and Caring network @OU (http://intranet6.open.ac.uk/staff/ou-caring-network/). Through this network, I have spearheaded significant institutional changes for student carer and staff support.  Notable achievements are  the first ever Carer scholarship scheme to mark the OU’s 50th anniversary (http://business-school.open.ac.uk/news/open-university-launches-scholarship-fund-to-support-carers); the OU’s Carer Positive employer award;  and the  OU’s membership of Employers for Carers  The network’s Carer research group, that I also established and lead, uniquely enhances the OU’s research portfolio, enables the OU to respond to carer’s prioritisation within policy and research and undertakes scholarship that informs support and retention of student carers.  

Research interests

My research interests are: carers, caring, knowledge exchange, student carers, adult social care, former carers,  personalisation, carer and service user empowerment, the third sector and the life course approach to health and well-being. Current activities include:

  • Chairing the Care and Caring Network@OU : this network is the first of its kind in a UK HEI. Membership is open to anyone employed by the OU. Comprising 3 groups (each with their own chair) this network encourages knowledge exchange around care; carer research; provision of information, advice and guidance in carer-related policy; and promotes carers rights and carer-related policy development within the OU. 

  • Reviews Editor and Associate Editor Board for the International Journal of Care and Caring

  • Principal Investigator for a WELS Scholarship Research entitled ‘Students carers’ experiences of caring and OU study. This is one of a series of scholarship projects informing further developments in the support and retention of students who are carers

  • Management and development (in consultation with its international management team) of the Carer–related research and evidence exchange network’ (CAREN)(www.open.ac.uk/caren): a freely accessible network based on an independent, searchable database of carer-related research and evidence for use by stakeholders across the world. This network has significant implications in terms of improving the lives of the ever-increasing number of carers across the world by utilising existing information much more effectively

  • PhD supervisor for a student on the The lived experiences and psychosocial needs of carers of people with type 2 diabetes”

  • Member of the NICE Guideline Committee – Provision of support for adult carers

  • Member of NHS England Commitment to Carers Oversight Group

  • Book proposal, book, research proposal and journal paper reviewer

Teaching interests

K242: Ageing Societies and Global Health

K101: Introduction to Health and Social care

K323: Investigating health and social care

K313: Leadership and management in health and social care

K217: Adult health, social care and wellbeing

K219 Critical issues in health and wellbeing

K213 Health and illness

Caring counts in the workplace

Impact and engagement

Membership or offices held in learned societies and professional bodies

2016-18: National Institute for Health Research School for Social Care Research

2011-14: Honorary Research Fellow – Third Sector Research Centre

 

Membership of Government or other public committees

2019- Appointed as Member of the Ministerial Carers Action Plan Oversight Group

2017- Appointed as Member NICE Guideline Committee – Provision of support for adult carers

2017-  Appointed as Member of NHS England Commitment to Carers Oversight Group

2016-17: Appointed as Member of the cross-Government Independent Advisory Group on Carers

2016: Chair, Research and Evidence Task and Finish Group, Standing Commission on Carers

2016: Commission Panel member - Carers Trust ‘Care Act 2014 for Carers One Year On’

2015-16: Appointed as Member of the cross-Government Standing Commission on Carers

2015-16: Member of the Department of Health’s National Carers Strategy Reference Group

 Consultancies

2018- Advisor to Behavioural Science team in the Department for Work and Pensions on the Carers Employment Digital Discovery project

2018: Department of Health and Social care - forthcoming Green Paper on Care and Support for Older People

2017: Government Office for Science - Informal care expert group

2017: Development of the ‘business case’ for enhanced carer support - NHS England 

2013-14 : Development of a ‘Carers Hub’ - Royal College of General Practitioners

2012-8: Social Care Institute for Excellence (SCIE) Co-production Network

2011-14: Advisor to the Finnish Government on the development of a Finnish National Carers Strategy - Finnish Association of Caregiving Relatives and Friends

2008-09: Devising one of the seven modules in the Department of Health’s “Caring with confidence” programme (2008-2011)

 

Membership of Project Advisory Groups

2014-16: Department of Education’s “The lives of young carers” project

2012-3: 2 SCIE Guides - GP services for older people: A guide for care home managers” and “Dying well at home: the case for integrated working

2008-10: European Social Fund project “Driving change in welfare services for the  

 aged”

 

Academic editorial work

2016: Associate Editor and Editorial Board member, International Journal of Care and Caring

2016 - Reviews Editor, International Journal of Care and Caring  

On-going: Book proposal reviewer for Sage Publications, McGraw-Hill, OUP, Routledge and Pearsons Textbooks

Reviewer for: Ageing and Society, British Journal of Social Work, British Medical Journal, Health and Social Care in the Community (awarded Reviewer certificate in 2018), Journal of Health Services Research and Policy. Journal of Public Policy, Journal of Social Policy and Society, People, Journal of Social Work in Health Care, Place and Policy, Quality in Ageing and Older Adults (2016 Outstanding Reviewer Award), Sage Open, European Journal of Social Work, Community Work and Family

Book reviewer for Journal of Social Policy and Policy Press

Proposal Reviewer for Economic and Social Research Council, National Institute for Health Research, School for Social Care Research, the Irish Research Council, Dunhill Medical Trust and HRB Open Research

Social Care Elf and Mental Elf blogger/contributor

 

External examining

2017: PhD Examiner, Nottingham University

2015: PhD Examiner, Nottingham University

2015: PhD Examiner, Kingston University (Chair)

2014: PhD Examiner, St George’s, University of London

2013-5: Undergraduate External Examiner, The Open University

2008-12: Undergraduate External Examiner, Birmingham City University

July 2007: External member of validation panel for BSc Health and Well-being, Birmingham City University

External collaborations

Carers Trust

Carers UK

Department of Health and Social care

Employers for carers

NHS England

NHS Commitment to Carers programme.

National Institute for Health and Care Evidence

Social Care Institute for Excellence

Carers New South Wales

Southern Services Reform Group, Adelaide, Australia

Care Alliance (Ireland)

Family Carers Ireland

Family Carers Research Forum

Laurea University, Finland

Eurocarers

Swedish Family Care Competence Centre, Sweden

Canadian Home Care Association

Careum Foundation, Switzerland

Carers Japan

Betty Irene Moore School of Nursing, UC Davis USA

American Association of Retired Persons AARP

 

Research Activity

Externally funded projects

Exemplar models identification and support of older Carers and Carers of people with dementia

RoleStart dateEnd dateFunding source
Lead01/May/201731/Jan/2018NHS (National Health Service)
The project will work with system and voluntary sector partners to identify exemplar models identification and support of older Carers and Carers of people with dementia.

Carers Knowledge Exchange Resource

RoleStart dateEnd dateFunding source
Lead01/Mar/201630/Jun/2017SSCR NIHR School for Social Care Research
The primary focus of this timely 16 month project is a comprehensive scoping review of carer-related knowledge. The review will have two complementary purposes. One is to provide a unique mapping of carer-related evidence and knowledge, extending understanding about the nature of ‘what is known’ and building on existing foundations for research and knowledge exchange. The scoping review will be academically robust and detailed; its findings will be widely disseminated and offered in a number of formats. It will also contribute to the identification of future research priorities relating to carers and inform social care practice. The second purpose of the scoping review is that it will underpin a freely available digitalised resource developed in partnership with, and hosted and updated by, the Social Care Institute for Excellence (SCIE). This sustainable resource will be for use by commissioners, care workers, social workers, carers’ organisations, carers support workers, carers and service users. It will play an essential role in meeting the Care Act 2014 information and knowledge exchange requirements and support quality social care practice with carers and those for whom they care.

Publications

Surveillance, intervention and the politics of care (2019-05-01)
Kubiak, Christopher; Tomkins, Leah and Larkin, Mary
International Journal of Care and Caring, 3(2) (pp. 165-181)
Carer related research and knowledge: findings from a scoping review (2018-12-02)
Larkin, Mary; Henwood, Melanie and Milne, Alisoun
Health and Social Care in the Community, 27(1) (pp. 55-67)
The carer-related knowledge exchange network (CAREN): enhancing the relationship between research and evidence and policy and practice (2018-07-18)
Larkin, Mary and Milne, Alisoun
Evidence & Policy: A Journal of Research, Debate and Practice ((Early Access))
What do we know about older former carers? Key issues and themes (2017-07)
Larkin, Mary and Milne, Alisoun
Health and Social Care in the Community, 25(4) (pp. 1396-1403)
[Editorial] Care and caring: interdisciplinary perspectives on a societal issue of global significance (2017-03-23)
Yeandle, Sue; Chou, Yueh-Ching; Fine, Michael; Larkin, Mary and Milne, Alisoun
International Journal of Care and Caring, 1(1) (pp. 3-25)
Carers, choice and personalisation: what do we know? (2016-04)
Larkin, Mary and Mitchell, Wendy
Social Policy and Society, 15(2) (pp. 189-205)
[Book review] Margarita León (ed.) (2014), The Transformation of Care in European Societies (2016-04)
Larkin, Mary
Journal of Social Policy, 45(2) (pp. 381-382)
Caring in the 21st century: research evidence and knowledge generation (2015-01)
Larkin, Mary and Milne, Alisoun
Health and Social Care in the Community, 23(1) (pp. 1-3)
Developing the knowledge base about carers and personalisation: contributions made by an exploration of carers’ perspectives on personal budgets and the carer–service user relationship (2015-01)
Larkin, Mary
Health and Social Care in the Community, 23(1) (pp. 33-41)
Knowledge generation about care-giving in the UK: a critical review of research paradigms (2014-12-02)
Milne, Alisoun and Larkin, Mary
Health and Social Care in the Community, 23(1) (pp. 4-13)
Carers and empowerment in the UK: a critical reflection (2014-01-31)
Larkin, Mary and Milne, Alisoun
Social Policy and Society, 13(1) (pp. 25-38)
New partnerships in health and social care for an era of public spending cuts (2012)
Larkin, Mary; Richardson, Louise and Tabreham, Julia
Health and Social Care in the Community, 20(2) (pp. 199-207)
Life after caring: the post-caring experiences of former carers (2009)
Larkin, Mary
British Journal of Social Work, 39(6) (pp. 1026-1042)
Group support during caring and post-caring - the role of carers groups (2008)
Larkin, Mary
Groupwork, 17(2) (pp. 28-51)
Health and Well-Being Across the Life Course (2013)
Larkin, Mary
ISBN : 978-0-85702-881-5 | Publisher : Sage | Published : London
Social Aspects of Health, Illness and Healthcare (2011)
Larkin, Mary
ISBN : 978-0-33-523661-9 | Publisher : Open University Press | Published : Maidenhead
Vulnerable Groups in Health and Social Care (2009)
Larkin, Mary
ISBN : 978-1-4129-4823-4 | Publisher : Sage Publications | Published : London
Former carers (2021)
Larkin, Mary
In: Gu, Danan and Dupre, Matthew E. eds. Encyclopedia of Gerontology and Population Aging ((In Press))
ISBN : 978-3-030-22008-2 | Publisher : Springer
Care of vulnerable adults (2012-03-01)
Larkin, Mary
In: Blaber, A ed. Foundations for Paramedic Practice: A Theoretical Perspective (2nd ed) (pp. 174-187)
ISBN : 978-0-33-524387-7 | Publisher : McGraw-Hill | Published : Maidenhead
What about the carers? (2012-03-01)
Larkin, Mary
In: Lloyd, Cathy and Heller, Tom eds. Long Term Conditions: Challenges in Health and Social Care (pp. 185-198)
ISBN : 978-0-85702-749-8 | Publisher : Sage | Published : London
Disability and illness: the perspective of people living with a long-term condition (2012)
Milne, Margo; Larkin, Mary and Lloyd, Cathy
In: Lloyd, Cathy and Heller, Tom eds. Long Term Conditions: Challenges in Health and Social Care (pp. 10-21)
ISBN : 978-0-85702-749-8 | Publisher : Sage | Published : London
Working with vulnerable people: experiences of disability (2012)
Larkin, Mary
In: Lloyd, Cathy E. and Heller, Tom eds. Long Term Conditions: Challenges in Health & Social Care (pp. 124-138)
ISBN : 9780857027498 | Publisher : SAGE Publications Ltd. | Published : London
Knowledge exchange: making the most of scoping reviews (2019)
Larkin, Mary
In : WELS Research day (17 Jul 2019)
Maximising the potential of carer research and knowledge (2018-06-19)
Larkin, Mary
In : Maximising the potential of carer research and knowledge, Workshop (19 Jun 2018)
The legacies of caring (2018-06-18)
Larkin, Mary
In : ‘Life After Care’ (18 Jun 2018)
Understanding the needs of caring experienced learners (2018-04-17)
Larkin, Mary
In : Supporting the Supporters- Caring Experienced Learners (17 Apr 2018, Milton Keynes)
Carer resilience: ways forward for evidence-based policy and practice (2018)
Larkin, Mary
In : Carers New South Wales Biennial Conference (11-12 Oct 2018, Sydney Australia)
The case for a knowledge exchange network (CAREN) (2017-10-04)
Larkin, Mary
In : 7th International carers conference (4-7 Oct, Adelaide, Australia)
The case for a carer knowledge exchange network (CAREN) (2017-10-03)
Larkin, Mary
In : Carer-related knowledge exchange network (3 Oct, Adelaide - Southern services Reform group)
The case for a Carer knowledge exchange network (CAREN) (2017-09-28)
Larkin, Mary
In : CAREN: the carer knowledge exchange network (28 Sep 2017, Sydney, Australia)
Carer Research and Knowledge Scoping Review (2017-04-12)
Larkin, Mary
In : NIHR School for Social Care Conference 2017 (12 Apr 2017, LSE, London, UK)
Former’ older carers: their profile and needs (2017)
Larkin, Mary
In : 7th International Carers Conference, Adelaide, Australia (4-6 Oct 2017, Adelaide, Australia)
Scoping Carer Research (2016-09-05)
Larkin, Mary
In : 4th International Conference on Evidence-based Policy in Long-term Care (4-7 Sep 2016, London School of Economics)
'Former' older carers - what do we know about their profile and needs? (2016-06-16)
Larkin, Mary
In : Focusing on Older Carers: Exploring the Research and Practice Axis (16 Jun 2016, Bristol)
Unbecoming a carer (2015-09-10)
Larkin, Mary
In : Bristish Medical Sociology Association (2015)
Making room for fomer carers (2015-09-07)
Larkin, Mary
In : 6th International Carers Conference - Care and caring: future proofing the new demographics (03-06 Sep 2015, Gothenburg, Sweden)
What do we know about carer perspectives in mental health and disability services?” (2014)
Larkin, Mary
In : National Conference: What Works? User and Carer Perspectives on Mental Health and Disability Services. (11 Jun 2014, Leicester, UK)
Where to now for carer research? (2014)
Larkin, Mary
In : Carers: Informing and Improving Policy and Practice Through Research and Evaluation (30 Jan 2014, London, UK)
Is the third sector going to survive ‘personalisation? (2013)
Larkin, Mary
In : Health Care, Social Care, Voluntary Care: Perfect Partnerships or Dangerous Liaisons (24 Oct 2013, Harrogate)
Personal budgets and the carer-service user relationship: developing the knowledge base about carers and personalisation (2013)
Larkin, Mary
In : Yorkshire and Humberside Carers Lead Officer Network workshop (Jul 2013, York)
Personal budgets and the carer-service user relationship”. (2013)
Larkin, Mary
In : Carers Federation Board of Trustees workshop (Jun 2013, Nottingham)
Carers voices (2013)
Larkin, Mary
In : Compassionate Care: Giving Patients a Voice (13 May 2013)
The UK’s National Carers Strategy 2008: How did we get there and where are we going? (2012-03)
Larkin, Mary
In : Workshops at Ministry of Health and Social Affairs and Ministry of Employment and Economics (Mar 2102, Helsinki, Finland)
Making sure aging is active: the influence of health and well-being throughout the life course on active aging (2012-03)
Larkin, Mary
In : International Week (5-9 Mar 2012, Laurea University, Finland)
Carers research (2012)
Larkin, Mary
In : Care and Compassion Week (5-12 May 2012, De Montfort University, Leicester)
Personalisation: what will the impacts be for carers (2012)
Larkin, Mary and Dickinson, Helen
In : Carers, The Third Sector And Personalisation: The Future Research Agenda? (Apr 2012, Birmingham University)
Partnerships between universities and the Third Sector (2011-03)
Larkin, Mary
In : International Week 2011: Promoting Welfare Service Innovations - Entrepreneurship, Voluntary Work and Third Sector (7-11 Mar 2011, Laurea Tikkurila, Finland)
The UK’s National Carers Strategy 2008 - how did we get there and where are we going? (2011-02)
Larkin, Mary
In : Finnish National Association of Family Caregivers Conference (1 Feb 2011, Helsinki, Finland)
Carer empowerment (2010-09)
Larkin, Mary
In : Driving Change In Welfare Services For The Aged Project, 2008-2010 (21 Sep 2010, Helsinki, Finland)
Effective partnerships between voluntary organizations for carers and academia in social care in an era of public spending cuts (2010-07)
Larkin, Mary
In : 5th International Carers UK Conference, New frontiers in caring, 2010 and beyond (Jul 2010, Leeds)
A forgotten partnership? The carer-service user partnership and personalisation (2010-06)
Larkin, Mary
In : Shaping the Future of Social Work: 12th UK Joint Social Work Education Conference with the 4th UK Social Work Research Conference (30 Jun - 02 Jul 2010, University of Hertfordshire)
Promoting service user and carer empowerment in health and social care (2010-03)
Larkin, Mary
In : Promoting Individual And Group Empowerment In Social Services And Health Care (1-7 Mar 2010, Laurea University, Finland)
Once a carer, always a carer? Exploring identity changes post-caring (2009-06)
Larkin, Mary
In : 11th UK Joint Social Work Education Conference (Jun 2009, University of Hertfordshire)
Care and caring network@OU news bulletin 2019 (2019-06-10)
Larkin, Mary and Mcgrath, Lesley
The Open University
To meaningfully support carers, we must rethink their purpose and contribution (2018-11-08)
Henwood, Melanie; Larkin, Mary and Milne, Alisoun
LSE British Politics and Policy
Exemplar models and support for older carers and carers of people with dementia: informing commissioning: Executive Summary (2018-10-18)
Larkin, Mary; Henwood, Melanie and Milne, Alisoun
NHS England
Exemplar models and support for older carers and carers of people with dementia: informing commissioning (2018-10-17)
Henwood, Melanie; Larkin, Mary and Milne, Alisoun
NHS England, OU and University of Kent
Care and caring network@OU news bulletin 2018 (2018-06-11)
Larkin, Mary and Hudson, Gayle
The Open University
Including Family Carers: Adding Value and Impact to Research (2017-11-08)
Larkin, Mary; Milne, Alisoun; Henwood, Melanie; Croisdale-Appleby, David and Clark, Michael
The NIHR School for Social Care Research The School for Social Care Research, London.
Seeing the wood for the trees. Carer related research and knowledge: A scoping review (2017-11)
Henwood, Melanie; Larkin, Mary and Milne, Alisoun
Melanie Henwood Associates
Why carers are disadvantaged even when their responsibilities end (2015-10-19)
Larkin, Mary
The Conversation, London.
Testing stress training for black and minority ethnic carers of people with dementia (2015-07-29)
Larkin, Mary
Social care Elf
Testing a person-centred approach to carer support (2015-05-28)
Larkin, Mary
Social Care Elf
Attachment in people with dementia and their carers (2015-03-11)
Larkin, Mary
Social care Elf
Do high levels of caring mean poorer carer mental health? (2015-01-20)
Larkin, Mary
Social care Elf
Carers policy and practice: what about ‘former carers’? (2014-11)
Larkin, Mary
Social care Elf
Personal Budgets And The Carer- Service User Relationship (2014-06)
Larkin, Mary
Carers Federation, Nottingham.
Personalisation: The Beginning Of A New Dawn Or The End Of The Road For Third Sector Support For Carers? (2013)
Miller, Robin and Larkin, Mary
TSRC, Birmingham.
Demand for informal care is rising but supply is set to fall - we must solve this conundrum (2012-11)
Larkin, Mary and Milne, Alisoun
Community Care, Sutton.
Personalisation: what will the impacts be for carers? (2011)
Larkin, Mary and Dickinson, Helen
TSRC, Birmingham.
Caring for carers - the Open University's carer scholarship scheme ()
Larkin, Mary
The Open University