Julia Salmon is an OU alumna and member of the Platform Community Group. She's also a campaigner and in a series of blog posts she explains why it can be a very frustrating and thankless pastime...
If a job were advertised along the following lines: ‘Full-time position, anti-social hours, no pay, no expenses, no promotions, no holidays, frequently soul destroying, excessive workloads, impossible deadlines, minimum project length is 20 years, completion not guaranteed’, it would seem fair to assume that very few applications would be received.
But then again, it’s not the sort of job that is ever advertised; it’s a job you find yourself falling into reluctantly, resentfully, angrily. In conversation with a colleague the other day, he muttered: “No one ever asked me if I wanted this bloody job. I’d rather be enjoying my life.” Indeed, on a number of occasions in the last few years, I have sat on our kitchen floor, sobbing with conviction that the whole thing is too difficult. Wisely, my husband nods with the look of a sympathetic priest, pats my hand and puts the kettle on. It goes hand-in-hand with Victor Meldrew-style phraseology creeping into your sentences: “I don’t believe it...”, “Did you see that?” and the apoplectic “What the...?”: all are part of a panoply of indignation, the necessary fuel of which drives you forwards.
And the tune to which I bang my campaigning tambourine? Well, the journey has become as much part of the experience as the end goal; but my road less travelled leads to the Data Protection Act (1998), specifically focussing on medical and social care personal data records. (No, I don’t spend my free time unwrapping twisted telephone cables or de-fluffing my mouse roller-ball.) In plain English, the DPA regulates against fraudulent alteration of your personal data. However, the Act only recognises fraud where the perpetrator personally financially gains: this condition excludes public servants from being recognised as committing potential fraud. The Freedom of Information Act (2000) attempts to open up the argument on public accountability, as recently demonstrated by the Parliamentary expenses scandal. A key principle of our campaign is to protect the veracity of medical and social care records, something intimately relevant to us all.
However, the technicalities of a cause can detract from the emotional reasons for undertaking the journey. The problem with campaigning is the myth, misconception and martyrdom (the the Ms of the third sector) to which you can become prey, which neither serves you well nor furthers your chosen cause. I thought it would be helpful to define these dreaded pitfalls, as some dispelling is in order:
The myth – That a person is driven to be altruistic as a spontaneous act
Decidedly false. At least, no one founds what is now called a ‘social venture’, charity or campaigning group through boredom or to make themselves feel better. It is one of the most ruthlessly overwhelming activities, which frequently feels like self-flagellation. “Why did I ever get involved in all this?” most often permeates your thoughts, often followed by “Sod it”.
The misconception – That if a cause is genuine, the truth will out
Just occasionally this is true and it is this very slim hope that keeps you going. However, there are so many motives to evade answering issues, whether they are political, financial or represented by social taboos, that the truth generally gets buried in bureaucratic processes, until everyone has forgotten what the question was in the first place.
The martyrdom – A charitable person must be approaching sainthood
This is the easiest myth to dispel and would make my children fall on the floor laughing. People comment, “Where do you find the time?” implying that I must have discovered the 36 hour day. My family’s reply would be, “Sometimes she’s an utter rat bag and marches around the house like Mussolini, because something’s gone wrong. We know when to duck.” When things are a struggle, I don’t suffer in silence; fortunately, my family responds with plenty of tea and hugs – they are my back-up team.
So, why do it? I have encountered a lot of people in the last six years: some have wanted to help (MPs, legal professionals, advocates, charities) but, to date, all suggestions have failed. What initially appeared to be a simple problem has revealed itself to be a very complex one. Over time I have become a repository of these various ideas and outcomes, both from our own and other families’ experiences. By using this information, I still believe it is possible to improve our own society, even if in small part. That is why I do it.
Therefore, I invite you to join me on the campaigning trail, over the next few months. I will keep you posted on what it’s like to approach MPs, do the rounds of governmental departments, deal with real people and field the blows, from a lay-person’s perspective. It is a work in progress which will culminate in about 20 years or so, if I’m lucky.





