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ACT (2009). Let’s Talk about Sex; Let’s Talk about You and Me. (accessed 6.10.2015)

ACT & Triangle (2011). The Whole Picture: Exploring disability and sexuality. DVD.

Beresford BA & Stuttard L (2014). Young adults as users of adult healthcare: experiences of young adults with complex or life-limiting conditions. Clinical Medicine, vol 14, no 4, p 404-408.

Blackburn MC, Earle S & Komaromy C (2014). Relationships and Sexuality in Young Adults with Life-Limiting Conditions in the UK. BMJ Support Palliat Care, 4, A27 doi:10.1136/bmjspcare-2014-000654.74

Blackburn MC (2007). Safeguarding Children and Young People with Continence Difficulties: in Effective Management of Bladder and Bowel problems in Children. Ch1 p5-24; eds. Bonner L & Wells M: Class Publishing, London, ISBN 13: 9781859591659.

Blackburn MC (2002). Sexuality and Disability: Butterworth/Heinemann: Elsevier Science, ISBN: 7506-2252-0.

Brook (2014). Sex and Relationships Education (SRE) for the 21st Century, London: Available at Brook. (accessed 6thOctober 2015).

Care Quality Commission (2014). From the Pond into the Sea: Children’s Transition into Adult Life. (accessed 6th October 2015).

Care Quality Commission (2010). Guidance about Compliance: Summary of Regulations, Outcomes and Judgment Framework.

Chailey Heritage Foundation (2014). Safeguarding children and adults at risk (vulnerable adults). (accessed 6th October 2015).

De Than C (2014). Sex, Disability and Human Rights: Current legal and practical problems in Owen & De Than, Supporting Disabled People with their Sexual Lives; A clear guide for health and social care professionals: Jessica Kingsley Publishers, ISBN: 978-1-84905-369-9.

Earle S, Komaromy C & Layne L (2012). Understanding Reproductive Loss: Perspectives on Life, Death and Fertility. Ashgate.

Earle S, Foley P, Komaromy C & Lloyd CE (2008). Conceptualising Reproductive Loss: A Social Sciences Perspective, Human Fertility, vol 11, no 4, p259-262, ISSN: 1464-7273.

Earle S, Komaromy C, Foley P and Lloyd C (2007). The Social Dimensions of Reproductive Loss, The Practising Midwife, June, ISSN: 1461-3123.

Family Planning Association (2015). Online sex and relationships education resource for primary schools. (accessed 7th October 2015).

Fraser LK (2014). Prevalence in young adults with life-limiting and life threatening conditions.  Report available from Together for Short Lives.

Fraser LK, Miller M, Hain R, Norman P, Aldridge J, McKinney PA & Parslow RC (2012). Rising national prevalence of life-limiting conditions in children in England, Pediatrics, vol 129, no 4, p e923-e929, (accessed 6th October 2015).

Griffith R & Tengnah C (2014). Assessing capacity to consent to sexual relations: a guide for nurses, Br J Community Nurs, Apr, vol 18, no 4, p198-201.

Helen & Douglas House (2014). Transition and Beyond Toolkit for professionals working with young people who have palliative care needs.

Liddiard K (2013). Reflections on the Process of Researching Disabled People’s Sexual Lives, Social Research Online, vol 18, no 3, p10.

Liddiard K (2014). The Work of Disabled Identities in Intimate Relationships in Disability and Society, vol 29, no 1, p115-128.

Marie Curie (2016) 'Hiding who I am'. The reality of end of life care for LGBT people' 

Makaton: Sex Education Symbols Book (accessed on 6th October 2015).

NICE (2011, revised 2013). End of Life Care Quality Standards. (accessed 6th October 2015).

Nursing & Midwifery Council (2015). The Code: Professional Standards of Practice and Behaviour for Nurses and Midwives. (accessed on 6th October 2015).

Royal College of Nursing (2014). Core Knowledge. Sexual Health for Non-Experts. CPD Online Learning. (accessed 6th October 2015).

Wills C (2011). Obtaining Consent to help a Young Man with Difficulties Masturbating, Learning Disability Practice, vol 14, no 6.

Together for Short Lives (2015). Stepping Up: A Guide to Enabling a Good Transition to Adulthood for Young People with Life-Limiting and Life-Threatening Conditions, ISBN: 1 898 447 330.

Together for Short Lives (2013).  A Core Care Pathway for Children with Life-Limiting and Life-Threatening Conditions, third edition.

World Health Organization (2006a) Sexual and Reproductive Health. (accessed on 6th October 2015).

Contact us

If you would like to know more about the work of The Open University Sexuality Alliance or would like to get involved please contact:

Dr Sarah Earle
School of Health, Wellbeing and Social Care
Faculty of Wellbeing, Education and Language Studies
The Open University
Walton Hall
Milton Keynes


Telephone: 01908 654260

Sexuality Alliance Young Adults Blog